01/06/2026
Our Planning Manager, Charlie Bridgeman, is taking on the Gower Peninsula Ultra Challenge on 18th July, covering 50km of the South Wales coastline in a single day in support of a charity that has quietly held his family together through some of the hardest years of their lives.
When Charlie's son Callum was just two, he had his first major seizure. A genetic test later revealed KCNa2, a rare mutation that causes a form of early-onset epilepsy that doesn't respond to medication, and after every other option had been exhausted, Great Ormond Street prescribed the ketogenic diet, a strict, meticulously measured way of eating that takes hours of preparation every single day.
Through all of it, The Daisy Garland has held their hand. The charity funds NHS dieticians, supplies night-time breathing monitors to families who need them most, runs specialist cooking lessons, and offers the kind of practical, no-fuss support that makes an impossible situation feel a little more manageable. It was set up by Daisy's mum after Daisy died from SUDEP at the age of six, and that is the heart of why Charlie is doing this.
If you can spare anything at all to back him, his donation page is in the comments.
Go on, Charlie. We're right behind you.
