Special CirCAMPstances

Special CirCAMPstances Travelling with a Cerebral Palsy child in a R-pod camper. Living and Loving Life Beyond a Diagnosis!

We have almost made it through Tennessee. Brielle is doing so good. She is happy and singing her way south. We are out o...
11/22/2025

We have almost made it through Tennessee. Brielle is doing so good. She is happy and singing her way south. We are out of the cold and into 70 degree weather. Feels so good! Oh, and we have already been to 2 different Buc-ees. Mmmm!!!! Tomorrow, our goal is Mississippi, but we will going through Tuscaloosa during an Alabama football ball game. Ugh... 🤢🤮

Not an advertisement... this is how I have survived with very little sleep for over a month in the hospital. The  Sip Cl...
10/17/2025

Not an advertisement... this is how I have survived with very little sleep for over a month in the hospital. The Sip Club was only $5 a month when Brielle first came in for surgery at Boston Children’sHospital. I have used it for my morning coffee and also drinks throughout the day for more than a month now. A nice $394 savings. It has been a life saver for me. Thank you Panera.

Day  #4 after surgery was an unbelievable day. I thought today was gonna be a rough day of little gains, but it was far ...
09/21/2025

Day #4 after surgery was an unbelievable day. I thought today was gonna be a rough day of little gains, but it was far from that. Where do I start? Epidural OUT... Catheter OUT... Continuous Hydromorphone OFF... Pediasure feeds STARTED... Granddaddy cuddles STARTED... Wheelchair ADAPTED... Rooftop garden VISITED. Brielle's nurse today and tomorrow is incredible! She is so motivating. She has given us so much HOPE! Tomorrow is gonna be another great day!

I just now realized I had not even informed all our friends on here about Brielle's surgery. On Tuesday, Brielle had sur...
09/18/2025

I just now realized I had not even informed all our friends on here about Brielle's surgery. On Tuesday, Brielle had surgery on both hips. It's called Bilateral Femur Proximal Osteotomy. The surgery went well. The surgeon was worried he would have to reconstruct her pelvis on the left side as well as do ankle surgeries. He didn't have to do either of those. The surgery that she had is still a very hard surgery involving cutting both femurs and using plates and 8 screws to put everything back where it should be. She came out of surgery ok, but she was in a lot of pain for the next 20 hours before they finally got her pain managed. She is currently still on several forms of pain management, but she is comfortable. She's not herself, but she is comfortable here in the ICU. The last 24 hours have been so much better for her. Hopefully, she will continue to improve, so prayers are definitely requested. Thank yall and sorry I forgot to keep everyone updated on Brielle.

A week ago today, Brielle had her last therapy of the year   Boston. Brielle worked with many therapist during this Bost...
11/14/2024

A week ago today, Brielle had her last therapy of the year Boston. Brielle worked with many therapist during this Boston stay, but these two therapist were her main therapist for her weekly sessions. and were an integral part of Brielle's great progress over the last 6 months. Brielle has never taken so many steps in a gait trainer, and we have never had to worry about Brielle rolling off the bed, until now. Brielle has never played with or really interacted with toys like she does now. Thank you so much Sita and Kaitlin for all the hard work and dedication you put into Brielle's sessions.

Here at Normandy Farms Family Camping Resort, they don't celebrate Halloween just once. They celebrate it 3 different we...
11/01/2024

Here at Normandy Farms Family Camping Resort, they don't celebrate Halloween just once. They celebrate it 3 different weekends so Brielle has to have 3 costumes, right? Plus, she worked with me a little while today, so she had to dress up as a Pool Attendant, right? Lol She so cute in ALL of her costumes! HAPPY HALLOWEEN!

Congratulations  and Dallas Stars on the series win tonight!!! One of your biggest fans was cheering you on tonight. Bri...
05/06/2024

Congratulations and Dallas Stars on the series win tonight!!! One of your biggest fans was cheering you on tonight. Brielle got so excited to see yall win. Congrats from one of many HopeKids that was cheering you on!

We are officially on the road back to Massachusetts! One last stop at . Thank you again to everyone that has helped make...
04/05/2024

We are officially on the road back to Massachusetts! One last stop at . Thank you again to everyone that has helped make this possible! Special CirCAMPstances

It's been a rough week. Brielle has been in the hospital since Tuesday. We brought her to Urgent Care with fever and vom...
02/17/2024

It's been a rough week. Brielle has been in the hospital since Tuesday. We brought her to Urgent Care with fever and vomiting expecting to get a medicine to help her then head home. That obviously didn't happen. After many tests, xrays, ultrasounds, and one surgery, it was determined that Brielle had kidney stones and a UTI caused by the kidney stones. She had a stint put in her kidney tube(my medical term) to help her pass the stones which she will have to have another surgery to remove it later this week. Then she had some issues from anesthesia, so she's been here for an extra day so far. Hopefully today is the day she gets to go home. Brielle has been enjoying all the attention, except for the first couple days. She didn't enjoy any of that. Lol She even lost her first tooth during surgery and the tooth fairy came to visit her in the hospital. She's such a good patient.

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